Trenton, NJ — New Jersey’s rare disease community will gather to celebrate Rare Disease Day 2017 on Monday, February 27 from 9:00 a.m. to 12:00 p.m. at the New Jersey Business and Industry Association (NJBIA) at 10 West Lafayette Street in Trenton.
The half-day event will be sponsored by BioNJ, the HealthCare Institute of New Jersey (HINJ), New Jersey Rare Disease Alliance and NORD.
The morning will begin at 9:00 a.m. with coffee, pastries and networking, followed by speakers from the rare disease community, including patients, patient advocates, legislators, biomedical healthcare professionals and life sciences community leaders.
Topics will include addressing the needs of people with rare diseases through legislation and inclusion of the patient voice in the drug-development process.
The half-day event will be sponsored by BioNJ, the HealthCare Institute of New Jersey (HINJ), New Jersey Rare Disease Alliance and NORD.
The morning will begin at 9:00 a.m. with coffee, pastries and networking, followed by speakers from the rare disease community, including patients, patient advocates, legislators, biomedical healthcare professionals and life sciences community leaders.
Topics will include addressing the needs of people with rare diseases through legislation and inclusion of the patient voice in the drug-development process.
Business and industry leaders will speak about the spirit of innovation in New Jersey and the academic community’s role.
In addition, a member of the New Jersey Legislature will present a ceremonial resolution commemorating Rare Disease Day 2017 in New Jersey.
Following the presentations, patient advocates will walk to the State House to meet with legislators.
Registration information will be forthcoming.
In addition, a member of the New Jersey Legislature will present a ceremonial resolution commemorating Rare Disease Day 2017 in New Jersey.
Following the presentations, patient advocates will walk to the State House to meet with legislators.
Registration information will be forthcoming.
