New Jersey advocate Lisa Schill, a member of RASopathies Network USA, participated in many of the Caucus activities. She added, “30 million Americans are affected by more than 7,000 rare diseases. 95% of them do not have a single FDA approved treatment. We need a Rare Disease Caucus to help streamline the process of drug development by creating incentives for companies, reforming the policies and procedures of the FDA, to result in more efficient production that will save money, time, and most importantly, precious lives. I thank Congressman Lance for his leadership and look forward to continued progress next Congress.”
Lance has vowed to continue championing two causes close to the rare disease community: the Energy and Commerce Committee’s 21st Century Cures Initiative and the MODDERN Cures Act. Lance, a member of the Energy and Commerce Health Subcommittee, has joined in the year-long effort to work to ensure there is no gap between 21st Century science and the Washington regulatory process. This includes supporting better medical research to keep the United States at the global center of biomedical innovation.